Saturday 25 June 2011

Sunday 27 February 2011

Sunday. Busy day

Celyn started the day all happy and kicky. Was awake at 3am the minx and then she got up at 7. Clearly she runs on duracell or something as the child never needs any sleep!
Emma and her husband came over at lunchtime with their little girl Esme. Celyn was facsinated by seeing a little blond girl. Esme was here to try out celyn's walking frame and take it away. It was a success. A bit of adjustment with various allen keys and in goes Esme. She pushes herself backwards the  forwards which is more than the ginger one ever managed. So its now hers :-)
Emma left me some biscuits which i am busy attatching to my hips. Celyn got stiff and cross in the afternoon and despite painkillers is still dystonic. now we have a name for these episodes. 'Dystonic storms'. Sadly there is no cure, just midazolan and painkillers to try and mitigate the terrible muscle spasms. Poor Celyn.
Have just emailed ed Miliband over the nappy campaign. can you believe there's not been a peep from his office after my last email? Even ShineyDave keeps in touch more often than that.

Saturday 26 February 2011